Hi to all just to mention I have now completed all my re vaccinations post stem cell transplant A well. Coordinated plan from stem cell transplant team and my local GP. surgery. Most grateful Hope others get the same follow ups Covid. Etc. Peace of mind...
Hi there first time posting. Got diagnosed with Lga Myeloma High Risk February 2024 and been on watch and wait. Just about getting my head around that and told its progressed so had first chemo on 15th May 2025. Have to have it weekly. Going to do 4 months...
I was diagnosed after a routine two-yearly health check at my GP, for which I must thank them. Just finished chemo, SCT and consolidation chemo over the last nine months and now ready to start a clinical trial of early-use Elranatamab. All side-effects...
Hi everyone, I am not sure that I am on the correct forum, but have recently been diagnosed with MGUS. I have been unable to find a forum for the condition and wonder if others with MGUS are posting here instead? Looking for others who are in similar...
Hi, My name is Debbie. I’m 55 and have been receiving treatment for myeloma since September 2021. I’m on my 5th line of treatment and now on Elranatamab. I’ve recently had a 5 week stay in hospital when first starting this new treatment as I had some...
I was diagnosed last November and it has taken me a long time to want to speak to people with the same diagnosis as me. I can’t find anyone with my exact diagnosis. Is there anyone who as what I have? I would like to speak to someone who has to ask how...
Hi, I don't really know how to use this, tried to no avail. I was diagnosed with mm, in Sept 23. I broke my back the previous Feb and was losing weight in my recovery.3 stone in a few months, my GP was at a loss. I saw a locum. Blood test on Monday...
Hello! Just wanted to say hi - supporting a parent with newly diagnosed myeloma. Will pop into carer forum too but wanted to connect with folks with experience of myeloma. Going into first cycle of treatment soon so any tips for staying sane very welcome...
Hi. Vespa here. A. K. A. Kevin. i have been on Lenolidamide for 5 months now. Due a severe skin itching reaction the constant reduced the dose amount from 8 mg to 4 mg tablets. This has helped but I still get itchy skin. I have tried antihistamines...
Hi All , diagnosed with multiple myeloma in dec 23 , had a rough year in 24 , one to forget really , after several stays in hospital with very bad reactions to maintenance treatments & chemo l had my stem cell transplant in London in June , lm part of...
