Hi. Vespa here. AKA. Kevin 5/2/25. Is 12 months post my auto SCT How am I doing ? I would say. Good to great ! Thanks to great care from NHS. and the hematology team at royal Worcestershire hospital i am on maintenance drug Lenalodamide and Zometa for...
Hi... my wife broke her thigh bone in November and this is when we found she has myeloma. It was a shock to say the least and it's rocked our world. She is alot stronger than I thought and was coping OK we have a 7 year old son so at times it's tough...
Hi that’s me a week in and after my second Bortezomib injection yesterday i can only describe my energy levels today as absent. I have felt like a zombie all day and just keep drifting in and out of sleep, I was advised by my Myeloma nurse that this...
Hello everyone just wondering if any of you lovely lot can help . How are you all responding to the treatment
Hi everyone my name is Peter and have multiple myeloma have been like this for a long time luckily it’s not getting any worse have bloods done every 4 weeks then telephone consultation my lights are high but they seem to think it could be my level as...
Hi I’m a Newbie to the group with a recent diagnosis of MM I’m Edinburgh based and 54 and had been experiencing lower back pain for over a year and paid for private a MRI that revealed I had 3 bulging discs, so lots of pain relief meds and physio support...
Hiya All, Don't really know where to start. My mum is 79 had no symptoms just went for some routine bloods and then got a call on a Friday afternoon at the end of November saying to go to the hospital on the Monday and we were hit with the News she...
Hi everyone I have been reading your posts and there is so much care and positive in the group. I am trying to sit and wait but it has really been one thing after another and I am losing the calm positive battle. In 2019 I notice my left hip was painful...
Hello, I am newly diagnosed with myeloma. Had a bone marrow biopsy that showed 15% plasma cells, and my lambda light chains are elevated with an abnormal ratio. Had been suffering from bone pain, fatigue, and nausea amongst other things for over a year...
Hi I have recently had stemcell transplant and I'm now at home recovering. My first week I was feeling nauseus although I was never sick it did put me off my food however that has now passed and I'm eating normally. The fatigue has took me by suprise...
