Started first ever cycle of DVTD on 12/08, which I thought went well. Unfortunately I then picked up an infection, which they cannot source, and have been in hospital for the last 6 days. Still trying to get 48 hrs of normal temperatures before I can...
Just on my first week of treatment and my sleep pattern is awful. 2 hr naps throughout the night. About an hour in the afternoon. The nighttime is driving me mad, so it’s a vicious circle. Any help other than a knock to the head
Hi there I would like to ask about getting infections I am just over a year post stem cell transplant But I have had 2 bad chest infections meaning I had to be hospitalised one in April then another one in July I am very careful of going into crowds...
I am at "the highest risk of progressing to active MM within 2 years" according to the hospital. I would be pleased to connect with someone in a similar situation and learn how you manage the uncertainty and find hope and acceptance.
I was diagnosed on 01/07 with multiple myeloma. I am just awaiting my treatment dates but have had biopsy, mri and ct scan. I’m due to have chemo and then a stem cell transplant I am still at the blubbering stage. I can’t speak to anyone about it without...
Hi everyone, After 4 months of chronic back pain - 2 weeks ago I was admitted to hospital- a whirlwind of tests, scans, biopsy. I have been diagnosed with Myeloma which has fractured my spine. I had one dose of Radiotherapy to spine. And on Tues...
Hi I joined the forum today but was also a member in 2021. My sister had the ‘good standard’ treatment for multiple myeloma in 2021 and has had 4 years of a great life with the expected adjustments. She has been unwell for the past 4 weeks with diarrhoea...
I have recently had abnormal protein levels in my blood tests. Thankfully to a marvellous doctor he refered me onto the 2 week wait referal to see a haemotologist. Ive had a ct scan and saw my consultant yesterday.My ct scan is normal and all other...
Hi all. I came onto this group 11 months ago after my diagnosis. Besides being monitored nothing much has changed. However today I am feeling very overwhelmed. Last visit to the specialist was six weeks ago. I was feeling a lot of pain. Very tired and...
Hi Everyone recently diagnosed 16 weeks in chemo and now starting radiotherapy for 8mm tumour in right hip.
