Hi All,
I was sent to Aberdeen RI on the 13th for pre harvest checks and to introduce me to the equipment at the blood transfusion centre. I was getting my Cyclophosomide priming on the 20th and harvest was booked for Edinburgh RI on the 27th, my good lady had booked a hotel for us for 4 days as edinburgh has no accommodation for patients or there carers.
Anyhow I had an appointment to go to my haematology on the 14th to see my consultant, he told us that my harvest and transplant were cancelled as my cancer was progressing instead of reducing after 4 cycles of RADAR Trial, very dissappointed to have wasted 5 months.
However onwards and upwards on Wednesday I started my second line of treatment which is DVD, my consultant said there would normally have been a fourth drug in the regime but they did not have the money for it, that comment did nor bode well. So I had my first course of treatment on Wednesday which included a dex infusion which meant i was up at 3am and had to take another 20 of those horrid DEx again in the morning.
I am hearing reasonably good feed back about DVD and was wondering what others think of it and if it has worked for them.
Thanks
Hi Alamo
I'm sorry to read that your trial didn't work out but it's good that your consultant has another line of treatment up their sleeve.
I don't have any experience with the treatment you're now on, as I had a different type of cancer, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be easier to spot.
While you're waiting for replies it would be great if you could put something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Alamo there are a few group members who are on or had the DVD treatment.
Try putting DVD into the search tool 
near the top as this will bring up the older discussions and as always you can reply to the discussion and see if the member gets back to you.
