Start of treatment

Bumping your post to put it at the top of the page.

Thankyou

Hi , I can recall that feeling well . I started Dara VTD and Zometa Sept 3rd 2022 and went on to have a Stem Cell Transplant early April this year  .

Diagnosed on Friday started treatment on the Monday although I was well warned for a few weeks before I was about to start . If you have a specialist nurse you can contact she may be able to tell you more about the treatment plan . Mine did , she was honest which was what I needed .

Scary times but if you can go with the flow the Haemotology team are brilliant at what they do and everyone is there to help you along .

Best wishes Sue 

Many thanks cakie and best wishes.

Hi there I am starting in a clinical trial on Monday 6/11/23 I have myeloma I am in high risk category to get 3 cycles chemo and tablets then stem cell replacement then other 12 cycles of treatment there is lot of meds involved in it said only option for me just hope go into remission at end and get some of life back even a small bit that’s my aim my treatment start very fast it shocked me how fast thought be awhile but in matter of 2 weeks is all 

I am starting everything next week Monday is see consultant and bloods again to make sure fit enough to go thru chemo 

then i in on Tuesday at 9am (all day in hospital) for chemo and tablets 

every Monday and Tuesday will be same but hopefully not all day on Tuesday 

have been told my myeloma is in high risk category going with bone marrow test in past few weeks had bone but got another one done yesterday and loads of blood taken 

everything happening so fast wasn’t expecting it to be fast but it’s better than waiting around I suppose the team looking after me are so amazing and can’t thank them enough for all they doing for me and every patients they deal with xxxx

HI Pugsy,  that is fast moving,    no  different to you i am MM   on cycle   3 of the DVTB     i hope you were given some fact sheets on the drugs medications ,  i also walked out of the hospital with steroids and the plan for cycle 1 started the following week    each cycle is  24 days,  i  visit the hospital  3 times per week   Monday always bloods,  dont miss them,  with no blood tests you may not get the treatment,    Tuesday   treatment,  Friday  treatment        all Subcantanuoius  abdomen  injections,       day  1 of  the cycle is a 15 minute IV   drip with  one drug,    the   game changer  is the use of the NON  Chemo drug Daratumumab (Darzalex®)  with Stroids taken at home before the injections and then also the next day,    this is  works with your own immune system to attack the Milemona DNA  

like you the team of nurses and the Consultant Haemotogist   are great,       i am 66 male    got the news on y  66 the birthday and my retirement day,  for fast track Cancer,   MRI  X RAY  BONE MARROW BIOPSY yes  MM    confirmed,    so the plan was given to me,  some in plain English a lot from the SCT  nurse     i have my SCT  lined hip for early 2024     please dont be afraid,  the treatment works,  my blood test are in a good place right now,    the side effects drugs you will take home     need managing   in a diary,  and get a good   head  thermometer for recording temperature,  i have a  Sepsis plan in place from the Hospital   god forbid i need it,  but it gets  fast track A and  E  within  1 hour of admission,  so an important document,         insomnia  is my   big problem  and for the first time i have  had to take a pain relive stinger than  Parcetoml,  due to a recent  slip  on my arse,  which  does not help any MM   patient  with weak bones,   hope the  rant  helps you,  i am the same   journey,  and   take care to care for your carer,  they are probably just as freighted as you are    Kevin  and of course best wishes,  would love to know more about the  clinical trial  if you are allowed to share,  i offered my self forward   but the go to plan seems to be DVTB  

Hi there that message u sent was full of great info thank u so much I am a 55 yr old female 

the clinical trial is called RADAR they said it’s only option for me as it gives them more meds to give me more time they are changing some of the meds listed in info sheets on the trial it give me better chance I was in shock when they told me how bad I was ( I knew I was getting bad because I am really struggling every day and gets worse day by day I am hoping and praying this works 

this is the 15th clinical trial at present RADAR