I hope it’s okay to post here as I don’t know if I have it yet. Its a month since the odd ache mostly on right side under ribs, going up my back, sometimes in hips and lower jaw. All the blood teats including cortisol, calcium plasma glucose, FBC etc...
I got a particle report of the bone marrow biopsy. It says 9% plasma cells, though the sample is diluted by peripheral blood, the real figure could be higher. There was no non-malignant plasma observed in the bone marrow. Can it still be smouldering myeloma...
Hi there, I'm having my first appointment with the haematologist at the University College Hospital Macmillan Cancer Centre. What should I expect? I have had months' of blood tests from the GP and rheumatologist (because autoimmune issues were suspected...
My Wife has had MM for about 10 years. Revlimid and Dex to lower numbers. A successful stem cell transplant from own cells After Revlimid failed 2 years ago, Pomylist also failed quickly, then moved to Darzalex FastPro, which worked great for 2...
Hi, I’m new here and hoping someone can clarify something regarding a positive Bence Jones test. Has anyone here had a positive Bence Jones test and still been diagnosed with MGUS or smouldering MGUS rather than full Myeloma? I was diagnosed with MGUS...
Hi has anyone had reactions to the maintenance drug Lenodomide ? I have been reacting with very large Hive spots, vomiting & my lips feeling swollen tongue tingly like you have been to the dentist. my doses changed I am now on 2.5mg the lowest no...
Today I had an appointment with the stem cell team. I have just come to the end of the chemo sessions regarding the radar trial, and was told that I am practically in remission!!! I have near to no myeloma cells present, and what is, should be killed...
Hi all, well I didn't expect that. I thought I would be hooked up to a drip. But it was a Chemo injection. Plus 30+ tablets. Up to now I feel okay. I am on the Ridor trial. All the nursing staff are really lovely and very supportive. I am...
Hi All, I was sent to Aberdeen RI on the 13th for pre harvest checks and to introduce me to the equipment at the blood transfusion centre. I was getting my Cyclophosomide priming on the 20th and harvest was booked for Edinburgh RI on the 27th, my good...
Out of curiosity, how many were found when you were diagnosed? Apparently I have them all up my spine, in my legs and arms and in the skull I keep seeing posts where people only have a couple. I feel a bit like my bones are like an aero bar!
