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Hi, Its looking like I have pleural mesothelioma and peritoneal. I have agreed to go down the VATS ( video assisted thoracoscopy) procedure for confirmation diagnosis. However, after reading the paperwork about it, it has frightened me as the after...
Hi everyone This isa group that I never envisaged being in! My fit, healthy, non smoking, rarely drinking and very precious hubby has just been diagnosed with Sarcomatoid Mesothelioma! We are both devastated, and in shock!! We have been sent info on...
Morning Next week I will be starting immunotherapy treatment for Mesothelioma. I will be given two drugs to begin with. When I went this week to Claterbridge Hospital in Liverpool for pre-treatment blood tests and a ECG my treatment plan was not available...
Hi everyone, I was diagnosed with mesothelioma in December 2022 and had an operation to remove the pleural lining from my right lung my heart and diaphragm in February 2023, I must say that my cancer is now stable I and has been for the last four scans...
Hi, my dad had just been diagnosed with lung cancer pleural mesothelioma. He has been given a permanent chest drain to hep with the breathlessness. He has been offered proton beam therapy. Has anyone experience this treatment. Would just like to hear...
Hi everyone, I was diagnosed with mesothelioma in December 22 and what a shock that was, but no doubt you’ll know all about that. I had surgery in February 23 and since then having three monthly scans, the first two showed clear but the third showed...
Hi all, My Dad has been receiving immunotherapy for the last 5 months. He has lost so much weight from it, probably about 3 stone and has very little appetite. He is also struggling to get food down and has had ulcers on the back of his tongue! He...
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
My dad was diagnosed with Meso in the summer and has undergone immunotherapy treatment. He’s just had his first CT scan and the doctors in Bristol are saying the treatment isn’t working so therefore they are stopping. He was offered chemo but because...
Hello, am new to the site, was diagnosed in September and am currently responding very well to immunotherapy.
