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My dads 79 and was in relatively good health. He was over in holiday for a few weeks taking care of his older brother. When my husband and I went over at the end of August to bring him back, we noticed his breathing a bit faster. When we asked he said...
Good evening My dad had first consultant catch up today following his biopsy Mesothelioma diagnosis last month and was told Immunotheraphy is the treatment he will be starting which is every 3 weeks for 2 years! They said he said stage 2 -3 though is...
Hi everyone it’s 4am and I can’t sleep my partner of 40 years was diagnosed on 1/7/24 and the prognosis of average 4-18 months was given to us on 3/7/24 which has traumatised me and I am having trouble coming to terms with it how does anyone deal with...
Evening all, After a batch of tests ( x ray, CT scan, pleural aspiration and finally a VATS pleura biopsy surgery, my dad was told today he has Mesothelioma. We are all devastated and shocked. He can't recall any extended asbestos exposure and ironically...
Good evening all My dad, 73 has had recent pleural biopsy surgery and he has been told it is Pleural Mesothelioma. He is awaiting to see cancer centre to discuss stage and what treatments he can be given. We don't know if it is advanced yet or more...
Hi, my names Paul. Diagnosed end of November 23. Two chest drains and talc treatment. Started immunotherapy Jan 24. Major allergic attack on second treatment, now have Antihistamine and Steroid infusion before treatments and no repeat. At the moment feeling...
What on earth can we do? Dad’s memory and cognitive abilities are severely reducing. He doesn’t understand what’s being said, he’s angry that his disease means he gets no straight answers and he’s now starting to believe that we are all ganging up against...
Hi everyone, I was diagnosed with mesothelioma in December 22 and had an operation in February 23 to remove the plural from around my lung, heart and diaphragm and been recovering ever since. Have scans every three months to check on any return of the...
Hello, I’ve just joined this group hoping to get some help on support for my Dad and mum. My dad was diagnosed with Epitheliod Mesothelioma in sept 2022. They said that they wouldn’t operate as it was too close to his heart. He started Immunotherapy...
Hello Everyone , My prof is very keen to have me start the Mitope treatment trials . Anyone have any experience of this to share ? Thanks
