Hi all
Just putting my current situation out there. Pleural Meso. Diagnosed Dec 23, as otherwise fit started immuno Jan 24 with usual 4months to possible year prognosis. Second treat major reaction, thought I had had it. Sirted with Steroid and Antihistamine which with future treats given before. Apart from the itch had 4/5 treats before muscle bone pain so steroids, miss a treat. 2/3 more treats, pulmonary embolism, another break as hospitalised with bleeding and clots in urine,. One treatment, blood test shows liver problem. Back in hospital three weeks, ALT through the roof, steroids again gets it down so sent home on reducing dose. Oh and now got steroid induced type 2. When ALT gets low enough taken off steroids and put back on immuno but big mistake as ALT rising. Get jaundice, all the symptoms , yellow, itching, nausea, dark wee. Feel awful and back in hospital. Scan shows previously stable tumour now has nodules that have gone from 8-14 mm in 4 months and I have been told no more immuno, told all that is left is six chemo treatments but if danger that could harm liver, maybe not. I feel pretty good which is also a dilemma as if offered chemo do I want it now with 2/3 months of summer to enjoy ? Maybe the last. Or by putting off may leave it too late? Seeing Oncologist in trn days to discusd.
