Dad diagnosed with Mesothelioma

I was diagnosed with pleural mesothelioma in December 22, I was at stage two and was lucky enough to offered an operation to to remove the pleural from my right lung, heart and diaphragm to get rid of the disease.

It was successful for nine months , then after the fourth scan it showed signs of returning so I was put on a course of immunotherapy, 18 cycles three weeks apart and I will be having my twelfth cycle thu

 Malpas  so sorry you are experiencing this awful illness.  Wishing you well with your next cycle of immunotherapy.  Do you have any advice I can pass on?  Have you had many side effects from immunotherapy?  Thank you so much for responding.

Sorry got called away, having my twelfth cycle Thursday 27th march, so far it’s working well, my cancer has not grown any larger.

I would like to tell you that it gets easier but I have gotten used to having the disease and I live from day to day and try not to expect too much.

The worst part is that I can’t do much anymore, as soon as I try to do something I get tired and short of breath and have to stop, I have been active all my life and find it difficult to let someone else do all the work.

You do get used to living with it so in a way it does get a bit easier.

Hello, I’m sorry your Dad is going though this. I know many patients have had success with Immunotherapy. Even if it didn’t work for my husband, I can say he tolerated it very well and had no adverse effects. Good luck and sending hugs full of empathy 

So sorry to read about your dad my dad was stage 2/3 when he was first treatment given immunotherapy. it does work well for about 2 in 10 sadly for my dad it orogressed into his abdonen. he then went on to chemo but that didnt work either he lived exactly 12 months from symptom onset to his passing. everyone responds differently though best of luck to your dad xx

I hope treatment goes well for your Dad, immunotherapy can work really well with the epithelioid type, there are side effect s but how severe these are appears to affect people differently  and some people have done brilliantly . Unfortunately . It didn’t work for me but my type was biphasic. , I’ve just finished some chemo which has helped, I’m so grateful to have another treatment option.

I can understand your shock, especially having been through treatment yourself, it must feel overwhelming. I’m a year on since diagnosis it took time following the initial  diagnosis but as a family we have adjusted and actually life has carried on .I found talking to someone through Macmillian helpful and the same support was offered to my family .

I really  hope treatments goes well for your Dad xx