Dad diagnosed with Mesothelioma

  • 4 replies
  • 14 subscribers
  • 148 views

Hi,

My Dad has been diagnosed with Epithelioid Pleurel Mesothelioma. We, as a family are devastated. Does it get any easier to cope with? Dad is going to be starting Immunotherapy soon to see if that can buy him some extra time.  I've just been through aggressive breast cancer treatment, I want to help my Dad and do everything I can to help. Anyone else in a similar situation?

  • I was diagnosed with pleural mesothelioma in December 22, I was at stage two and was lucky enough to offered an operation to to remove the pleural from my right lung, heart and diaphragm to get rid of the disease.

    It was successful for nine months , then after the fourth scan it showed signs of returning so I was put on a course of immunotherapy, 18 cycles three weeks apart and I will be having my twelfth cycle thu

  •    so sorry you are experiencing this awful illness.  Wishing you well with your next cycle of immunotherapy.  Do you have any advice I can pass on?  Have you had many side effects from immunotherapy?  Thank you so much for responding.

  • Sorry got called away, having my twelfth cycle Thursday 27th march, so far it’s working well, my cancer has not grown any larger.

    I would like to tell you that it gets easier but I have gotten used to having the disease and I live from day to day and try not to expect too much.

    The worst part is that I can’t do much anymore, as soon as I try to do something I get tired and short of breath and have to stop, I have been active all my life and find it difficult to let someone else do all the work.

    You do get used to living with it so in a way it does get a bit easier.

  • Hello, I’m sorry your Dad is going though this. I know many patients have had success with Immunotherapy. Even if it didn’t work for my husband, I can say he tolerated it very well and had no adverse effects. Good luck and sending hugs full of empathy