Mesothelioma Pleural

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  • Last year a follow up CT after a partial nephrectomy, identified a small dot near the heart,a further scan stated an abnormality.Pet scan was intensely avid or hot,and diagnosis was lung cancer.Operated on 30th June with a lobectomy of lower lobe open surgery.However the follow up appt this week then result returned as Mesothelioma (pleural) to my surprise and the team. I haven't any symptoms,nor before surgery but quite a shock. Trying to work out when and where I was exposed,spent 20 years working for the local authority.
  • Recovering well but don't want to think I may have further surgery ,to await referral to East Midlands meso MDT and their recommendation.
  • Hi  

    I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I can completely understand how shocked you must have been to discover that you are dealing with a different type of cancer to what you originally thought. 

    I noticed that your post hadn't had any replies yet so responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your diagnoses and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Thank you for the message

    Until next appt after Leicester mdt have reviewed there is no treatment discussed,to await their recommendation.

    Surgery team had started procedure as keyhole,but soon became obvious it wasn't what they had anticipated,so open surgery.sample biopsy confirmed Meso,only told last Wednesday after follow up appt.