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So in an attempt to see if people are actually here I'm hoping for some replies.... come on you know you want to ;) Is there anybody out there????
Hello all.. Briefly: nordic protocol followed by rituximab maintenance. So far so good as far as the cancer, but it's now been determined that I have immune aetiology so the rituximab maintenance has been stopped. Does anyone have any useful links...
Hi i was diagnosed January 2020 and finished treatment in following July. By January 2021 I had a few symptoms cropping up and had a scan and apparently I’m 1mm away from more treatment but that was, as I said, 18 months ago. My consultant and MacMillan...
MCL diagnosis just over a year ago. Described as indolent, I'm glad to say. How does that fit with MCL being diagnosed as a high grade lymphoma type? Had immunotherapy... Ibrutinib and rituximab. The ibrutinib didn't agree with me and stopped both...
Hi, I'm new to this forum. I was just diagnosed with Mantle cell lymphoma with CD23+ phenotype. The oncologist indicated that mine was an agressive form but low risk, although I'm still uncertain what that truly translates to. He said that because it...
Hi, I'm yet another new member of the MCL forum ..... I'm led to believe that I might be one of the younger people here as I am 49
Hello - my sister, age 55, has been recently diagnosed with MCL. She hasn’t started chemotherapy treatment yet, but will be shortly. She’s being offered a clinical drug trial with Acalabrutinib, which she would take alongside chemotherapy. This is apparently...
I started my MCL journey in April 2015 Starting in May I had 4 cycles of ARA-C chemo with rituximab and detramethadone. In November 2015 I had my Autologous SCT with the LEAM conditioning routine. This kept me in remission until January 2022 when it...
Hi everyone. I have just been alerted to this forum through my being a member of a Facebook MCL UK group. I am actually in hospital undergoing my Auto SCT on day 5! Diagnosed in June 2020. Been through RChop and RDhap then Ibrutinib until August 2021...
Hi everyone, I’ve just joined. Have been on active monitoring since 2017 but had radiotherapy on my groin firstly, currently for a lump behind my tongue. Would be interested to hear from anyone who has avoided chemotherapy so far
