Morning all Not been on here here for what seems like ages ( sorry ) but i'm now 5 session down with 1 more to go in couple of weeks . It's been a trying time but i'm getting through this , i have had 3 sessions of the rchop where i was in for the...
Hi I’m John and I was diagnosed with the MCL in December 25 and Started R-CVP in July 2026. I will start My next course treatment later this month., My side effects of the Treatment to date is extreme lack of energy and neuropathy in hands and feet caused...
Hi, I'm new and was diagnosed with mantle cell lymphoma 06/02/26.
Where do I start. Well went to A&E in October 2024 because of back pain and abdomen like a swollen house brick. Doctor immediately ordered scan and then was called into side room to be given devastating news that I had MCL, no cure but treatable. Refused...
Hi all I Was diagnosed with MCL back in August 2024 which was picked up from a biopsy taken from a bowel polyp. I had no symptoms so a bit of a shock. My local hospital was very poor in not only telling me what type of lymphoma I had but also referring...
I was just wondering has anyone on here beeen diagnosed with stage with stage 4 mantle cell lymphoma with a TP53 mutation, how has your journey been?
Hi, I have just been diagnosed with stage 3 mantel cell lymphoma. I am due to see the Dr on Monday, but I saw the results from my PET scan with the diagnosis on Wednesday. I was in belief from a previous CT scan and Ultra sound that it was low grade lymphoma...
Hello all, Following an unidentified possible viral infection that started in June 2024 and totally floored me, I was diagnosed with Mantle Cell Lymphoma early December 2024. I had a lot of blood tests, scans which revealed an enlarged spleen, and a...
My partner has just been diagnosed with mantle cell lymphoma today. He's 49. I'm so terrified to find out what stage it's at and what his prognosis is. We have 2 little boys. I cant bear seeing their happy faces knowing that they could lose their Dad...
My mum was diagnosed with mcl low grade stage 4 sept 24 and is on w&w but everyday her mental health is getting worse its constant all day every day, she feels her life is over she will never get it back or feel good again. She is scared of treatment...
