Hi all...or anyone. I've been on ibrutinib for a year now following Nordic protocol. Stem cell was ruled due to age (81), and I have a severe reaction to rituximab. I'm wondering - have any readers been on ibrutinib for longer - and if so are there...
Is anyone put themselves forward for the ZEBRA clinical trial?
I am meeting my consultant this Friday. I have been in remission for about eighteen months but about two years since I was first diagnosed with MCL. I now have, what to me feels like, a table tennis ball growing under my right ear. I had an ultrasound...
Hi all. diagnosed with MCL in November. It’s slow growing. Lumps in my lymph nodes and zero further symptoms. gas bloods. Had scans and it’s seemingly just there. next appointment next week with next steps. I feel physically well. But mentally done. The...
Hi, I haven't been on much but need to chat, I was just diagnosed with mantle cell lymphoma March this year, have been on watch and wait. Was in hospital in June for while after a got a virus which sent everything every shape, prior to my hospital stay...
Hi All! I was 46 with 13-year-old-twins when I was diagnosed with Mantle Cell Lymphoma. Fortunately, I've been in remission now for almost 3 years. I just posted a blog on this site that I think will be helpful for newly diagnosed patients and their friends...
My name is Philip. I was diagnosed with MCL at the end of May this year. I have been treated since June with R-CHOP and Cytarabine. my sixth and possibly last cycle starts next week.
I’m being bounced between haematology and neurology. I’ve had MCL since 2020 and successfully had 8 x rituximab and was in remission for approx 2 years. Now officially in relapse although I have some awful symptoms, the nodes aren’t big enough to hit...
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