Hi, I'm new to this forum. I was just diagnosed with Mantle cell lymphoma with CD23+ phenotype. The oncologist indicated that mine was an agressive form but low risk, although I'm still uncertain what that truly translates to. He said that because it is high-grade that there is a better chance that treatment can be effective in completely getting rid of it, whereas low grade would respond to treatment but the chance of it returning is high. Does that sound possible?
He seemed confident that 8 courses of chemotherapy and immuno target therapy would resolve this (and possibly reverse the peripheral neuorpathy and bilateral calf muscle loss in my legs with foot drop that doctors have unsuccessfully tried to get a diagnosis on for over 12 years to no avail). Does anyone have an opinion if there would be any actual clinical benefit to treating mlc in a UK cancer hospital, or somewhere else in Europe or the US at a top cancer hospital? Or are drug treatment options relatively universal nowadays regardless of where someone is treated?
I am due to get a PET scan and bone marrow biopsy in the coming week. Does anyone on this forum have any experience dealing with MLC w/CD23+? I'm so overwhelmed and incredibly freightened with my diagnosis.
