Read, reply go on give it a go

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So in an attempt to see if people are actually here I'm hoping for some replies.... come on you know you want to ;)

Is there anybody out there????

  • Hi again  although I don’t have Mantle Cell I am always around to chat.

    The Mantle Cell group is not a busy group so not a lot of folks around.

    To widen your ability to connect with others do check out Lymphoma Action

    Lymphoma Action is a small but very active UK Lymphoma Specific Charity who have lots of good reliable information, videos and run regular Lymphoma Online Support Groups I highly recommend these groups as there is nothing better than talking with other who have walked the journey.

    They also have a great Lymphoma Action Buddy Service where people can be linked up with someone who has walked the same treatment journey. They also have a Lymphoma helpline on 0808 808 5555 where Sharon or Nic will be on hand to give you some support - open every week day from 10 till 3.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hello John... Nobody here but us sick chickens. But here we are. 

  • Can't help feel reassured by the lack of activity.... I hope you guys are hanging in there. 

  • Hi, I am new although I have been watching this forum for a little while but thought I should reply!

    I am mid forties and a woman, so quite unusual to have MCL. I was diagnosed earlier this year and I am going through the Nordic protocol in the hope that I can get to a stem cell transplant in a few months.

  • Hi  and welcome.

    As you are going onto Stem Cell Transplant you may want to introduce yourself to our dedicated Stem cell transplant (SCT) group. You will find me there as I have had two SCTs

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you Thehighlander. I am not quite sure yet if I'll get to the SCT as I have a very aggressive and difficult form of MCL to treat, but as soon as I get the approval (in a few months) then I will join the group thank you.

  • I have a completely different rare and very hard to treat type of NHL but SCT did the job - hit my community name to see my story.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you, your story has been really helpful. I'm sorry you have been through so much over the years, but it is great to see you are in remission.