So in an attempt to see if people are actually here I'm hoping for some replies.... come on you know you want to ;)
Is there anybody out there????
Hi again John27 although I don’t have Mantle Cell I am always around to chat.
The Mantle Cell group is not a busy group so not a lot of folks around.
To widen your ability to connect with others do check out Lymphoma Action
Lymphoma Action is a small but very active UK Lymphoma Specific Charity who have lots of good reliable information, videos and run regular Lymphoma Online Support Groups I highly recommend these groups as there is nothing better than talking with other who have walked the journey.
They also have a great Lymphoma Action Buddy Service where people can be linked up with someone who has walked the same treatment journey. They also have a Lymphoma helpline on 0808 808 5555 where Sharon or Nic will be on hand to give you some support - open every week day from 10 till 3.
Can't help feel reassured by the lack of activity.... I hope you guys are hanging in there.
Hi, I am new although I have been watching this forum for a little while but thought I should reply!
I am mid forties and a woman, so quite unusual to have MCL. I was diagnosed earlier this year and I am going through the Nordic protocol in the hope that I can get to a stem cell transplant in a few months.
Hi WoodlandFells and welcome.
As you are going onto Stem Cell Transplant you may want to introduce yourself to our dedicated Stem cell transplant (SCT) group. You will find me there as I have had two SCTs
Thank you Thehighlander. I am not quite sure yet if I'll get to the SCT as I have a very aggressive and difficult form of MCL to treat, but as soon as I get the approval (in a few months) then I will join the group thank you.
I have a completely different rare and very hard to treat type of NHL but SCT did the job - hit my community name to see my story.
Thank you, your story has been really helpful. I'm sorry you have been through so much over the years, but it is great to see you are in remission.
Whatever cancer throws your way, we’re right there with you.
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