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I’ve had two cycles of chemotherapy with the third due this week. I’m also having a PICC line put in the day before as there are problems with my veins. I’ve had just about every side effect there is and I’m starting to feel depressed. I’m usually a very...
I just want to drop in past to wish all our new and long standing group members and their families a healthy and safe 2023
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Trigger warning, this message relates to the death of Woodland Fells. Woodland Fells was my wife and asked that I post here in the event of her death. She felt that it was important that people knew how her story ended rather her just disappearing...
Hi I'm new to this group and I'm not sure what to expect but I'm curious if anyone feels like me. I have been living with mantle cell for about 6 years now and have had a stem cell transplant, however I feel anxious and stressed most of the time is this...
hi everyone, I was diagnosed 6/7 months ago with Mantle Cell and can't tell you how shocking that diagnosis was, it was blurted out that I had cancer everywhere by a radiologist who should not have told me. I drove home from the hospital stunned. The...
Hello....I am new to this group and am hoping I will gain some more information about my "condition". A brief history; I am in Melbourne. Australia and was diagnosed with Mantle Cell Lymphoma in May 2020 at the age of 71. My course of treatment...
Hi all Recently diagnosed MCL, last week's PET scan revealed I am Stage 2E and so am getting PICC line on 25th to start Nordic R-MAXI-CHOP cycle 1 of 6. Not looking forward to it in the slightest, so would love to hear some success stories and happy...
Hello I have just been diagnosed last Thursday and it's all very scarey. Start treatment next Monday.
Hello My husband has relapsed MCL after eight years of being clear. We tried Loxo 305, seemed to be working until two weeks ago. Now they are wanting to give him several rounds of R-CHOP then hopefully if his bloods are where they should be, he could...
