I had a rad neph 8 months ago and I still haven't had a review. It is now 7 weeks since my CT scan but no results yet. To be quite frank this state of affairs is really annoying me. Update Radiology now says report went to consultant on 8 march...
Has anyone found that their apetite has grown massively after surgery? Mine was pretty good prior (I was trying to lose weight) and post surgery I’d lost nearly a stone in weight (mainly due to the loss of a kidney and also due to barely eating for a...
My blood calcium levels are high again. The zometa isnt working so I am going back in .
I had my surgery around 3 weeks ago now and once I woke up post surgery in the ward I was told that as my surgery had been keyhole they had inflated my abdomen up with gas to give themselves more room to work, within the next day I realised that this...
Hiya! I’m lucky enough to be going to Ibiza in a fortnight and as I am on immunotherapy I have been told to be extra careful in the sun. Can anyone suggest a sun cream that won‘t make me feel like I‘m about to swim the channel it’s that thick. Thank...
So I had my left kidney removed around 3 weeks ago and generally speaking I'm doing a lot better now than I was previously. However.... I've started having these weird hot flushes that suddenly come on out of nowhere, they literally feel like I've sat...
I received a message fro Sue’s husband ( buttercup 01 ) saying Sue passed away in November. I can’t believe it she had been doing so well on Pazopanib. Both her and Gragon gave me support when I started treatment. I’m devastated
Although treatment on pazopanib is going well, we all know this is mainly life prolonging and has an end date in its effectiveness over time, I'm currently at 1200mg daily, what are folks doing in second line treatments Trevor
Hi everyone First off, I must stress this is by no means "scare mongering". Only genuine concern and passing on relevant information, for everyone here! I noticed today an email that had gone directly to my junk mail , 3 days ago. Heading was (Important...
Dear All my wife Val was diagnosed with Metatistic RCC in January 22. She had various scans and started Ipi/Nivo in August. After her scan in November, her oncon phoned to say "great news! your tumour has stopped growing". Now on Nivo only, her last...
