Waiting

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I had a rad neph 8 months ago and I still haven't had a review. It is now 7 weeks since my CT scan but no results yet.

To be quite frank this state of affairs is really annoying me.

Update

Radiology now says report went to consultant on 8 march. What the heck are they doing ?

  • When that happened to me, I phoned up Radiology (number on the appt letter) and politely asked whether the report had been sent.  They put an "escalation" flag on it.  Two days later I made the same call etc It didn't take long for them to arrive with my oncologist after that - a week maybe.  But I wasn't as patient as you, neither did I need the results either.  I phoned up when they were officially "late".  My onco requests CT w/c blah and results by dd/mm/yy.  I think a few days later I started phoning up.  Onco phoned to apologise "I still don't have your scan report, but it's got an escalation on it" he said!  Joy  

    At this late scan they asked me "is it urgent?" and I said no because we have the meeting scheduled in, in a couple of weeks.  I was cross that they clearly put it on the "do not bother" pile.  I have my lecture prepared for when they ask me again, but they haven't.  

  • You need to hassle the hospital - McMillan nurse and surgeon secretary-they must tell you your scan results even if normal. 
    I waited months for my op, 90 days, and am just 40 days post op after open surgery. Don’t let yourself be sidelined- keep phoning!

  • The surgeons sec does that "very busy with other patients " routine.

  • Only thing is to keep phoning it sounds like. Have to say that I'm starting to see the many cracks and flaws in the system myself - It's not filling me with a great deal of confidence as I begin immuno..

  • Hassle your McMillan nurse because she can help I’m sure 

  • I don't have a nurse.

  • Yes I’m afraid the NHS is crumbling. It just can’t cope with the numbers because we shut down for almost two years. Was told it took three months for routine letters to be typed when I complained about my urgent one taking a month!! Hopefully you’ll be managed better with the oncologists - I think that’s the way I’ll be going so keep in touch, I have my post op appointment on 12 days so I’ll find out my fate then.

    i unfortunately experienced the flaws waiting 98 days for surgery after diagnosis and in end paid for private appt with surgeon to say how unhappy I was then , operated in within 17 days! Who knows if that helped, but having been a nurse all my working life I knew the system and I just hassled all the time, we’ll when I needed too.

  • You should have been given contact details for one. What does the hospital say about this - even if they are based elsewhere you should be referred to one., even if it’s just to talk over things

  • Should is a fine word. But what use is it?

  • You should have been assigned a specialist nurse, right at the very beginning of treatment!! They are usually with the consultant in the room on very 1st appointment. Funny thing is, they are the 1st to tell you "keep phoning". It's what they are there for.