Hi I have stage 4 kidney cancer that’s spread to my lung, had my biopsy several weeks ago but no other communication from hospital, I’m a very anxious person and worried that my cancer is going to spread faster and i honestly feel on my own has anyone...
Hello Everyone. I’m a 49 female and yesterday had my first consultant appointment where I was told I had metastatic kidney carcinoma. I have a tumour in my left kidney (11cm) and this has spread to my lymph glands. I am utterly terrified. I have been...
Hi, I joined here a few weeks ago, thinking I had stage 1 kidney cancer.I am 61 years old. Details are on my profile page. I saw the urologist today and am stunned to be told I have Stage 4 kidney cancer, it's spread to both lungs already. They can...
I attended the Beatson today hoping I would be put on lev/evo combo tomorrow as Nivolumab failed. I was told my liver functions are not right due to a blockage between pancreas and liver so will need a stent to get liver function normal before I can start...
Hi everyone, its been awhile from I was on. After my op in Feb of this year, everything seemed to be going well. Was still having niggly pains but now in the right-side as well. Keep having to get bloods repeated for liver function now too. Gallstones...
Hello Everyone, My wife Val is undergoing Immunotherapy, now on Ipi only. She has developed several patches of rough browny/red skin on her back. Has anyone had experience of this? She mentioned it at her last two treatment appointments, but was advised...
Hi everyone, I was told I had suspected TCC early last September. I am now 12 weeks post Nephroureterectomy and finally had my follow up appointment with the consultant. The histology showed it wasn't cancer at all. They don't really know why but basically...
My partner saw oncologist on Monday . He was on tivozanib. Now he has been put on Cabozantinib. It’s supposed to work better on the bones. Radiotherapy isn’t an option anymore. Everywhere but his bones the cancer has decreased. Is there anyone who has...
Hello Everyone Remember @gragon? anndanv posted this update in the incurables group: I am so sorry to let you know that I have had a message from Ian's wife (Gragon on the site) has died peacefully in St Catherine's Hospice in Scarborough. My husband...
Hi everyone, I'm Eliza from the Community team. I wanted to highlight that Ellie has shared her story on Community News about her experiences of getting diagnosed with kidney cancer and coping with side effects. She's shared her story as a video and...
