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In June I was referred with a rapidly growing lump and some irritating white spots on the under side of my tongue to Maxillofacial, in July I was given a biopsy, in August the words ‘malignant tumour’ entered my world and on 2nd September I was led into...
Hi everyone Sorry I’ve not been on here for a bit – life’s been busy and my treatment has kept me on my toes I need a bit of wisdom from those who’ve been through this – my mouth currently feels like the Sahara Desert and every bite is a battle...
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Hi everyone, 9 months post treatment now ,and I'd just like to update you with how things are and see if anyone else has been here at this stage. My Tongue is really dry at the base most of the time. Even though I drink fluids it still stays the same...
Hi all, I’m a year post RT treatment and still have a very swollen floor of my mouth. The max fax team have never commented on any problems and I wondered if anyone else has this change since operations for tongue cancer. Also I used to be able to touch...
Hi everyone, I'm Beth a 36 year old dental nurse (can you believe it), so I'm pretty aware when it comes to looking for signs of oral cancer. I have had LLETZ treatment before due to an abnormal smear and I found out I had HPV 16 and 18. Glorious...
Sugery September and October 2024 Finished my Radiotherapy in February Pet CT scan all Fine and Oncologist has given me 95 % Chance of Cure so obviously I was over the moon - Referred back to ENT for follow up and Surveillance Had my First Appt...
Hi. Feeling down in the dumps over the speed of recovery. Still fully dependent on my RIG, throat and tongue really sore and phlegm production is just gross. Any advice please x
Hi everyone I've been to have my mask made today. I managed by the skin of the teeth to get through that. I'm very claustrophobic but thought I would be able to have my eyes open which would help me cope. Turns out I can't. And I can't have the eye...
Just wanted to share some good news I recently received. I had my most recent scans and follow-up with my oncologist in August, and I'm happy to report that there are still no signs of any cancer at this time!!!! To say I'm relieved is, a major understatement...
