Bad claustrophobia and not even started yet!

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  • Hi everyone

I've been to have my mask made today. I managed by the skin of the teeth to get through that.

I'm very claustrophobic but thought I would be able to have my eyes open which would help me cope. Turns out I can't. And I can't have the eye holes cut out.

Went to have the initial CT and just lost it. Had my audio book playing and tried all sorts to calm down. Had to get them to get me out.

So next week my husband is on hols and coming with me and they are going to give me some light sedation.

I've no idea how I'm going to cope for 6 weeks.

Has anyone been very claustrophobic and/or found the sedation helped?

Thanks

  • Hi Hen. 
    hmmm yes I suspect the usual distraction methods won’t work. Sedation has helped lots of people here but I do recall a couple of members having hypnotherapy which got them through. 
    I think once you get the first few sessions over and done with you will find the rest easier. 
    Hugs. 
    Let us know how you get on. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • And I can't have the eye holes cut out.

    I can’t understand that. If it makes the difference between you being able to cope and not I don’t see why they won’t do it. Can you ask again and remind them how terrified you are? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Sedation does help some patients, radiotherapy staff will do everything in their power to help, play your favourite music, talk to you often to ease your mind. It is stressful but the treatment is crucial for curing us, your husband being nearby should also help.

    Most of us are pretty terrified by the situation we find ourselves in.

    Take care.

    Michael

  • They said it'll make my mask too unstable. I'm having treatment on the right side of my head and neck.