Follow up

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Sugery September and October  2024

Finished my  Radiotherapy  in February  

Pet CT scan all Fine  and Oncologist  has given me 95 % Chance of Cure so obviously I  was over the moon  - Referred back to ENT for follow up and Surveillance 

Had my First Appt back in Ent Today  , Camera Down and Examination  of my Neck  , No coconcerns at all but I was a bit taken aback by needing to be seen every 6 Weeks. Just wondered  what anyone  elses Experience  is with Initial  Follow up in First Year .

  • Every six weeks first year

    Eight weeks second

    Twelve weeks third and fourth

    Six months last year 

    These are the U.K. guidelines

    Recommendations

    • Patients should be followed up to a minimum of five years with a prolonged follow-up for selected patients.

    • Patients should be followed up at least two monthly in the first two years and three to six monthly in the subsequent years.

    • Patients should be seen in dedicated multidisciplinary head and neck oncology clinics.

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Thanks so  much for your swift reply.  I have felt anxious  all the way home with them  saying every 6 Weeks 

  • I've transitioned from having appointments every six weeks to every eight weeks since I've just passed the one-year mark post-treatment. My next appointment is tomorrow. I tend to feel anxious during the week leading up to it, worried about the possibility of a recurrence. However, I'm very thankful for the regular check-ups, as they allow me to relax until the next appointment approaches. It's good  to know everything is going well for you too.

  • I’ve added the U.K. guidelines. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Reviews every 3 months for the first two years after CRT finished, then every 6 months for the next 3 years

    Michael

  • My check-ups were the same as Dani has written.  It's good that they keep a close eye on us, I found them very reassuring.

    Ray.

  • Hi.  I can also reassure you.  I was treated back in 2013 and I've just checked my notebook to make sure I've remembered the timings correctly.  Mine was Year one - Monthly for 6 months, followed by 2 monthly for 6 months.  

    Pleased to hear you're making such good progress. 

  • Two and a half years after finishing treatment (at Guy's) I'm down to six-monthly checkups. My oncologist said they are finding that most recurrences are spotted by patients, not at checkups, so he is doing phone follow ups instead. However I still get seen in person by ENT consultant - which I always find reassuring.

    September 2022 aged 63 diagnosed with HPV associated SCC base of tongue T4 N2 M0. Chemo & radiotherapy for 6 weeks ending Nov 2022. Now over 2 years all clear. See my profile for longer story

  • My oncologist said they are finding that most recurrences are spotted by patients, not at checkups,

    Which is the rationale behind the  PETNECK2 TRIAL

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Every 3 months for me. Two surgeries and RT which ended in December last year. Camera into the throat at each checkup. I haven’t had any scans as such, not yet anyway