Hpv + tonsil and tongue base cancer. 7 weeks post treatment

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Hi.  Feeling down in the dumps over the speed of recovery.  Still fully dependent on my RIG, throat and tongue really sore and phlegm production is just gross. Any advice please x

  • Hi Floss

    What worked for me was little sips of water to try to clear the gunk.

    I tried lots of soft food as early as I could.

    Have you tried to swallow soft stuff and what pain killers are you on?

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

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  • Seven weeks is pretty early in recovery, I was still reliant on my PEG for most of my calorie intake, also managed small portions of mash and gravy or mild cheese sauce, things started to get better after weeks 10-12, Caphosol helped with mucus, Difflam, oramorph, MST and Biotene helped with pain.

    Michael

  • I can manage little sips of water, sometimes it goes down fine and others it's like it's hitting a wall of phlegm and it actually squelches when I swallow Nauseated face it's gross lol. Everything feels and tastes disgusting and I'm a bit scared of choking,  as I get quite bad coughing fits. I'm under the SLT team and seeing them Monday . I've just weaned myself off zomorph over the last 2 weeks on the advice of my oncologist,  but take paracetamol and have oromorph when I need it.