Swollen floor of mouth since tongue cancer

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Hi all, I’m a year post RT treatment and still have a very swollen floor of my mouth. The max fax team have never commented on any problems and I wondered if anyone else has this change since operations for tongue cancer. Also I used to be able to touch my nose with my tongue and now can just about lick my lips! A small price to pay I know but want to see if this is the norm for most people?

Sue x

  • Hi Sue

    Although not the floor of my mouth my tongue on the side that took much of the RT blasting still feels swollen on occasions and I do bite it when it is like that.  I measure my recovery of my tongue in a strange, but amusing way. A year ago I could not lick a yoghurt pot lid - I just could not stick my tongue out past my lips without pain.  Now I can.  It is a silly little measure, but a valid one in how I have and am still improving over time 18 months post treatment.

    Peter
    See my profile for more details of my convoluted journey
  • Thanks for your reply Peter, hopefully over time my tongue will be more flexible and the swelling will gradually go down.

    Sue 

  • Hi Sue,

    I too  had an op on my tongue and head neck dissection and RT. My tongue has never been the same since all this happened. Still feels numb on the op side and  swollen. I still do my jaw exercises every day and neck exercises daily. It does help me get movement on my tongue and it feels easier to move around my mouth when I have done them. I feel my cheek swollen at times during the day especially if I have a dry mouth. X

  • I was able to eat a mild homemade curry for the first time last week  since January 2024 when I bit my tongue and developed an ulcer that turned out to be cancer. Great achievement lol 

  • It’s so frustrating isn’t it? When I’m worried hearing others stories calms me down as I keep thinking that I have another problem when things don’t look right. I hope you are doing ok now. Sue x

  • Wow I’m jealous, this I haven’t been able to achieve yet. Well done x

  • Hi Sue I’m also able to touch my tongue with my nose took around 18 months to be able to do it. Keep doing your exercises I still do them now. 

    hugs 

    Hazel xx

    Hazel aka RadioactiveRaz 

    My blog is www.radioactiveraz.wordpress.com  HPV 16+ tonsil cancer Now  6 years  post treatment. 35 radiotherapy 2 chemo T2N2NM.Happily getting on with living always happy to help

    2 videos I’ve been involved with raising awareness of HNC and HPV cancers 

    https://www.instagram.com/merckhealthcare/reel/DBs8Y0niJ8N/

  • Wow very impressive Hazel I have a long way to go to reach my nose! Wink xx

  • I’m also able to touch my tongue with my nose

    My mum could do that. I used to contort my tongue and face into all sorts when I was a child to copy her 

    I have a long way to go to reach my nose!

    I never could Cry

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

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