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Hello lovely people. Been getting Duraphat on GP prescription for maybe 3 years now. BoT Oropharynx, concurrent chemo radiation full gamut. Subsequent minimal saliva. You know the score. Today however my repeat request was refused. Some reference...
Well, this year has flown. It was a year on 8th September that I had a tonsillectomy and hemi thyroidectomy to remove right thyroid and cancerous nodule. In that time I have also had 6 weeks of radiotherapy and not eaten Christmas dinner, despite cooking...
New member, and really wish I was aware of these forums sooner as they look a great place to share experiences and seek advice. In March this year my world was turned upside down when, at the age of 48, I was diagnosed with HPV Head and Neck Cancer...
Hi guys, I finished my treatment exactly 3 years ago today. I'm doing gr eat, I feel well, am eating and drinking most things without problems even if food still tastes strange andI do still suffer from lack of saliva. Over the last two months I've...
Hi My husband had throat cancer stage 1 in March this year. The tumor was at the base of his tongue and went to 1 lymph node which is how he found it (a lump). He was lucky not to need chemo or radiotherapy so had robotic surgery to remove the tumor...
Today I still haven't heard anything from ENT about my 'so called' consultation and to hand in my consent form for the PATHOS Trial on Thursday 12th September. So I rang the hospital operator and asked what time my appointment is on Thursday 12th September...
Hi all 9 weeks after radiotherapy for tongue cancer and really struggling with it all. Stage 3 tumour, hemi glossectomy & forearm reconstruction, neck dissection 2 lymph nodes contained cancer so RT. I have ongoing cough, chesty like I forever need...
Hi to all my lovely people who have been patient, kind and understanding during my darkest hours through treatment! I want to say a huge and heartfelt thank you to each and every one of you! I had my PET Scan and after a stressful wait for the results...
September 6th 2024 - results day! The doctor was amazing and entered the room with a big smile and said, ‘I’ve got good news for you!’ My husband got the all clear! Wow - not really sure how we feel, the emotions! It’s fantastic! He was told he would...
Hi eleven weeks post RT. Just wanted to know if anyone experienced issues with throat at this stage. I feel as if my throat seems swollen and then is ok again . I'm using the nebuliser to clear any mucus as I find it hard to clear my throat. Is this common...
