Pet scan results

Pet scans often throw up minor signs that don't lead to anything...mine showed a prostate shadow even though my treatment was for tonsil and lymph node cancer..after further tests it was proved it was only an issue with the scan... your husband is right when he says take the good news that nothing major has been highlighted..

Good luck

Chas

Thanks I just worry constantly I feel a bit more relaxed about it now 

I totally understand how you feel, after my latest PET scan (13 weeks after treatment] the consultant said there was a light red area showing up on my lymph nodes but said that was what they would expect to see in someone that was recovering from radiotherapy there. Then in the letter that was send on to my local gp it said about the area and said that it ‘may’ be related to radiation damage.

‘May’ isn’t really good enough for me in this situation!?

Hi Curly. That all sounds a bit too relaxed for me but perhaps that's not what was intended and it's just been relayed in a bad way.

I had an avid PET/CT at 16 weeks so I know how you are feeling. I had a biopsy to follow and thank heavens no cancer was found. If it was me I would want a F2F to clarify. It's the "not had time to fully assess with radiology colleagues" that would irk me. 

Having said all that false positives are really common which is why these scans are being done later and later, so you probably have little to worry about.

Hope everything is OK and let us know if you feel up to it?

Hi 

I think I would also want them to do a face to face consultation. My pet ct scan wasn’t done until 18 weeks to alleviate hopefully the possible hot spots. My oncologist even during covid wants to impart the news face to face. Your hubby’s gone through treatment in my opinion he deserves a full explanation. Not a comment that radiological people haven’t had time ! 
Cancer is getting a raw deal in these covid time s patients need explanations.

Hazel 

Hi Curlywurly

I agree with you, I would definitely want a face to face so I could fully understand what the results mean. I know it would nag at the back of my mind until I heard from the experts. At least then you  and your husband can put it behind you and get on with life.

Best wishes for your husband’s ongoing recovery.

Lyn

As many have said the PET/CT can show up other issues aside from cancer.  That said I think the words the clinical team are using to you are not reassuring.  Personally I would go with a telephone call with the consultant after the MDT review, but I appreciate some feel the need for a F2F.

Whichever way you and your husband need the clarification and assurance to help you understand and live with the consequences of the cancer.  Just having that will help to put your mind at ease and focus on the joys of life. 

Yes PET/CT scans have a habit of showing up hot spots which can be very disconcerting.  At the very least I would expect a telephone conversation with the consultant to discuss the results and to give your husband the opportunity to ask any questions.

Linda x

Evening curly ,

I,m with you on this one.at the very least you want a face to face with the consultant. 

Get your questions together, thereafter you can both move on and concentrate on getting your hubby back to full health. 

Telephone  appts with GPs is wearing a bit thin now, and for me a  total non starter with your oncologist. 

You need that assurance ,but you may have to be persistent with his secretary 

Good luck 

Hi Martin just to let you know got vaccine on Friday g p rung  today. Put hubby in as well they’ve uplifted me to group 6 from 7. 
Hope you are ok 

Hazel xx