Yesterday I had the all clear on my first mri scan after radiotherapy. I’m so pleased and relieved. I know I still got a long way to go but this is another milestone completed.
I am still having problems with eating and still having 3 fortisips a day because I’m not taking in the calories I need for the day. My apetite is poor and as everything in my mouth feels heightened I find I’m chewing/biting on food unnecessary. Like oats and pips, lentils. And holding food in my mouth a while before swallowing. I don’t know if it’s all in my head or what, it’s weird. Does anyone else have any eating problems?
Hi eating is tough - tougher than they tell you - mash potato is easy - especially with gravy - timing it with pain meds is key for me as well. Pasta is good try less grains? Mealtime is a battle but the diflam spray and mouth washes help
How far along are you Alij1 ? It's about five months isn't it. If "bits" are irritating your mouth try smoother food. Pasta is good and you can vary that so much with different sauces. How did your throat settle down? You were having trouble with swelling if I remember correctly
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Hi i finished my treatment in Sep.like you im still having difficulties eating..but on a plus I can manage a slice of bread with butter ( not seeded bread ) dunked in tinned chicken soup lol my taste buds are terrible but at least its something....many congrats on your cleat mri scan xx
Yes it’s been 5 months after radiotherapy. I seen my consultant yesterday and told him again about my uvula and soft pallet has dropped and having trouble with tablets and food and mucus being stuck behind it and I have to heck to get it out. Plus I thought I had excess mucus and been hecking that out and he told me no not to do that but swallow it as hecking it out is aggravating my throat and mouth. So today I have been drinking more water to get rid of it by swallowing. He is also referring me to someone as he thinks my eating problem could be phycological, which I am tending to agree with him
Thanks Susie, I have eaten toast with tinned tomatoes and enjoyed that except the crust and the pips lol. I’m eating but my trouble is I’m sick of mashed potato and soup. I’m not enjoying food at the moment, it’s like the same thing all the time. I’ve tried curry and rice and pastas and bolognese but have trouble with the rice and minced meat. It’s so weird
He is also referring me to someone as he thinks my eating problem could be phycological, which I am tending to agree with him
Hi
I hope you get somewhere with this. Fingers crossed
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007