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Hi everyone kind of feels wrong to wish each of you "Happy New Year" or maybe that's just me. It also feels wrong to ignore it...can't win here, can I? So, let me say this. As we approach 2024 may it bring you strength, love and kindness. love...
So in September as giving my new manager my bank details at my hour into a new job... I collapsed with a massive seizure, never had one before I was diagnosed with a stage 4 glioblastoma, I've had 98% of this retched tumor removed but obviously they come...
Hey all, I've started writing a few different posts the past few days since being back home and I seem to abandon them midway thinking that the content is pointless or I'm sharing too much on the internet, or for whatever reason. But I think it will...
Hi, anyone have experience in Pembrolizumab? thank Steve
I just thought I'd post as its coming up to Christmas and I know its such a hard time. This rollercoaster never stops even for Christmas! This time last year my husband was 2 months post diagnosis and just had his op awaiting radio and chemo in the new...
It's been a week of ups and downs for us (mostly downs) but here's some much needed light relief. My wife doesn't understand dates and times since her initial symptoms last year (fancy name is Dyschronometria). That makes quite a few practical things...
My husband was diagnosed on 5 September with Grade 4 tumour. No treatment given as too advanced so just receiving palliative care at home with help from carers. He is on Dex and Lamotrigine. The last seven days his speech has been more laboured and he...
Hi all. Feeling a bit lost and looking for what others have done in similar situations. My husband 52 has GBM for the 17 + months (full details is in my profile). For the last month or so he sleeps 17-18 hrs a day , doesnt go out for walks and is finding...
Hi all …. It’s night time again and I’m mulling the day over … and more. Our 10 year old has been having some support in our Nurture facility at school to help him talk about things .. he doesn’t at home. His 12 week block finished today and he brought...
Hi folks I can sense from the posts and comments that there's a nervousness lurking about the impending festive season. I feel it here too but from the other end of the journey. I thought I would share the blog I wrote for the community blog section...
