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Hello, I am new to this group. My 48 year old husband was devastatingly diagnosed with GBM grade 4 suddenly at the end of September this year. He has had surgery where they managed to remove 70% of the tumour. Sadly the tumour has aggressively regrown...
This is tough isn't it? I know that everyone on here has so much on their plate right now that it feels wrong to go off on one, I'm only the carer and not even the one with cancer, there are so many of you far more up against it than me. But if I don...
Hello, I am a GBM patient. I was diagnosed 9 months ago and had a relatively successful resection, followed by SOC TMZ/radiation. So far all is relatively well but having read numerous clinical studies since my diagnosis I am very aware that it may return...
Hi everyone It's been 2 weeks since I lost my Dad... Currently going through all the emotions... Its strange how life just carries on as normal yet this enormous thing just happened... I really struggled with the 'unknowns' of my Dad's journey......
Hi everyone I feel like to update you all as I have posted on here a few times and you have all been so friendly and helpful. My mum sadly passed away surrounding by her loved one on Sunday night. We all devastated but at the same time glad she is not...
This post might be a stream of consciousness so my apologies for that, but I hope it may help me to get it off my chest and help others who are going through this experience also. We've just received the news that my Dad is in his end-of-life stage...
Hi I am 26 and my mum (55) has recently been diagnosed with a GBM. She had a craniotomy + debulking approx 5 weeks ago and this week has started radiotherapy with temozolomide. I work in healthcare (have just finished a rotation in neurosurgery) whereas...
On 14th November I found my 62 year old father on the floor having suffered what we now have come to believe was a TI (Stroke). For weeks previously he had been suffering with headaches. Something that has never truly affected him before. We both spoke...
My wonderful Dad passed away 2 days ago, 11 months after his official diagnosis at 62 years old. I feel so desperately sad. He had a big seizure week before last, resulting in a fall, a brain bleed and just an overall very quick decline. We found out...
Hi everyone, It’s been like a rollercoaster last couple of months. To summarise my mum was diagnosed with grade 4 glioblastoma in April and had a craniotomy to the tumours. She then had 6 weeks of radiotherapy and chemo which she coped really well with...
