I just thought I'd post as its coming up to Christmas and I know its such a hard time. This rollercoaster never stops even for Christmas! This time last year my husband was 2 months post diagnosis and just had his op awaiting radio and chemo in the new year.
Those initial months were horrific and I couldn't bear the thought of losing him and being a widow at 51 so I decided to focus on the immediate future and live in the now. Not at all easy but I felt there was no other option. We can't change the diagnosis no matter how hard I wish for it to be different
So last Christmas I planned events for the year including Peter kay tickets for the following December. It allowed us to have hope, and things to look forward to. My husband was convinced he wouldn't make most of the events but here we are a year later! We cried when we made it to the Peter kay event! (Odd I know for a comedy gig!)
I'm doing the same this year, gifting experiences and getting things in the diary. I know nothing is guaranteed and that this evil disease will eventually take over but for now I'm living in hope and making lots of memories.
I have seen changes in him over the last few months , mood , energy etc and it's so hard to watch but also so important to enjoy the moments we can. Maybe I'm living in a state of denial but if it helps I'll take it!
I hope everyone on this horrible journey can find some hope and comfort over the festive period.
Xxx
Loving the positivity! A positive attitude and something to look forward always helps.
Love n hugs
Wee Me xx
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This could have been me writing about my wife. Diagnosed similar time (Nov 22) and just over a year down. We're living in blissful denial, and planning a few things for the coming year. But I miss who she was - the changes are subtle but tough to witness and be part of.
Thanks for your upbeat message and hope you have a wonderful Christmas
xxx
Thank you Jobo for this - it has really helped me. My husband is having the chemotherapy rounds after his operation and 6 week radiotherapy and chemo. We have been to the hospital today to pick it up and he starts tomorrow again, until Boxing Day. I only said today to him that I need to try hard to live in the moment and not keep fretting about the (inevitable) future. I would be so happy if we were celebrating Christmas together next year … your post has inspired me … thank you.
I too have got some ‘experiences’ for Christmas presents … a trip of Anfield Liverpool stadium with our two boys (aged 12 and 10), a trip for us to see the Puffins on Skomer Island and for me and my husband, a night at a Rhod Gilbert gig … all things to look forward to and focus on right?
Thank you for sharing this - I feel that this awful disease and prognosis shouldn’t be all consuming and I need to look forward to some special times. Thank you for giving me some hope and a kick up the backside!
HW66 … absolutely agree, the changes are so hard to watch and I miss the man I married and the father to our boys … our life we had prior to this cancer. It’s our new ‘normal’ and I need to embrace the good and ‘stable’ times.
Sending you a cwtch from Wales for Christmas
You too! I 100% know what you mean about subtle changes, it's heartbreaking and hard to come to terms with but I know it's not the real him and I definitely miss that. But I'm thankful he's still here and we have the opportunity to still do things together x
Awww sunflower its a rubbish journey especially with young children (my son is 12) I'm determined to make sure he has happy memories to look back on and shield him as much as possible. It's hard sometimes to focus on the now and not the inevitable future issues but I can honestly say it's helped me get through things so much by trying to stay as positive as I can. Sending lots of love and hope you can have a nice family Christmas xx
This post was so comforting to read- thank you so much for it.
It's my Dad with a diagnosis but it always gives me perspective to read from a partner's point of view because it means I can understand more so what my Mum is going through. So thank you for sharing, your words have helped me and I'm sure, many more people also.
The festive period is always emotional, I find I'm sad sometimes even when my Dad is happy because I wish I could hold onto that moment forever. It's not always like that but sometimes it is. I hope your Christmas is as good as it can be and I'm sending love
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