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All through 2020 my husband was just not 'feeling right' he had previously been diagnosed with vertigo towards the end of 2019 after experiencing some dizziness but that changed and he said his legs felt weak like he didnt have the same power in his legs...
My husband was diagnosed March 2023 aged 69 after having a seizure, I thought he was having a stroke. He couldn't have surgery due to position of tumour in left temporal lobe. He had standard of care, chemo and radiotherapy last summer, followed by 4...
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi everyone, Its been a while since my last update and I know some of this might not be relevant to you in the UK as the treatment options are often different, but I thought it might be good to put it here in case it is useful to someone one day. ...
Hello everyone, I’m new here! My 69 year old dad has recently being diagnosed with a GBM and his decline has unfortunately been rapid. From playing golf 2 months ago to not being able to walk unaided now.. My mam is caring for him at home and as he...
Based on a conversation elsewhere, I wondered whether it was worth a thread about equipment people have found helpful. I guess I am particularly thinking about mobility issues - but anything is fair game. Here are my initial thoughts... I might add...
how do people cope with the personality changes that happen with gbm/treatment? My mum is just not herself anymore and is constantly snapping and getting angry over the slightest thing. Rationally I know it’s not her fault and I feel selfish for saying...
Hi everyone! My (26) mum got diagnosed with a glioblastoma in autumn 2023. She's since had surgery to debulk the tumour and has been undergoing radio and chemotherapy. She's doing well but has quite intense changes in her mood - some days happy to...
Hi I just need to get my feelings out and I know this is a lovely group. I feel so scared and alone right now. Hubby has gbm 4 diagnosed Oct 23 , in Sept we got a clear scan and he was taken off dexamethasone. He was ok until early December when he...
Hi everyone kind of feels wrong to wish each of you "Happy New Year" or maybe that's just me. It also feels wrong to ignore it...can't win here, can I? So, let me say this. As we approach 2024 may it bring you strength, love and kindness. love...
