Pembrolizumab

Hi Stepehnl9

sorry this isn't one we've ever been offered but I'm  sure someone within this group will have some personal experience of it to share. 

I found this link on the main website that may help answer some of your questions

Pembrolizumab | Macmillan Cancer Support

Please remember you can also ask an expert via the online community or give the helpline a call. The number is below.

love n hugs

Wee Me xx

Hey Steve...

No idea.  But just wanted to say I hope you are doing OK.

Big hugs...

Pete

Thankyo

Hi, I am ok, unfortunately the tumour has grown as the TMZ hasn’t worked so trying a new immuethearpy drug if I can get bupa funding and then back for 2nd surgery

hi are you?

Okay... Sorry to hear that, but it sounds like you've got treatment options, so I guess you are being well looked after. Good luck with BUPA.

I'm really impressed with the way you keep pushing on, Steve. I'm conscious that many people on here (like me) are relatives, while you are someone who is fighting the battle yourself. Your really inspirational.

I'm in good shape, thanks.

Pete

Thanks, it’s a trial so hoping it works as it will help a lot of people if successful, I am the first to try at my hospital ,the drug isn’t new but just not used to treat brain cancer, I will keep fighting all the way, been with my partner for 19 years so we decided to get married on the 5th April 2023 so we all have something to look forward and the kids are really excited 

Had my first partial seizure yesterday which was strange and it Makes everything feel real..

Hope you're ok. Seizures can be scary/surreal things. Hopefully your medical team can tweak your medication to prevent it happening again.

Stay strong.

love n hugs

Wee Me xx

Sorry to hear that Stephen.

As Wee Me says, hopefully they can tweak your meds. 

We're with you, brother. Keep fighting the good fight.

Pete

Hopefully it’s a one off, been on keppra since July but if it happens again I might need to up the dose or try a new One, I have a 24hours emergency line and they were helpfully  and my doctor called me as well, so back on steroids again which is good and bad, bupa hasn’t approved the drug yet sp need to chase as chemo stopped the end of January so currently not on any treatment  about from the drugs