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My husband was diagnosed a year ago with GMB 4 and prognosis was 12 to 15 months if he had treatment. He had standard of care, radiotherapy and chemotherapy for six weeks - the tumour was inoperable on the left temporal lobe. He then had three more treatments...
A mean question to all carers I am not sure if it’s right or wrong to ask such question when husband is going through this dreadful disease. How many of you, as carers have managed to continue with full time job and for how long especially when husband...
Hello. I am Julia, I am 22 and my mum was diagnosed with a stage 4 GBM tumour in October last year. She is 52, she had a very busy and stressful lifestyle as she was a nurse on the emergency ward in hospital, and also taking care of my little sister...
Hello, well it’s taken me a little bit of time to get my head around this new journey I find myself on because I’m struggling And I wanted to reach out to see if 5here is anyone going through anything similar or who maybe understands any of what i am...
R was diagnosed in mid January..we thought we would make the most of the months he had left ..make good memories.. But his decline as been rapid . sorry for the rambling..it’s 4.51 am ..the district nurses came at 4am ..so I am sat here holding his...
Hi all. We have had such a rocky week this appears to be a good a place as any to share it. Started with us being given a two week turn around to give mums house back. I think we have finally got there but that in itself has been tough! I then had...
My husband had a frontal lobe mass biopsied 3 weeks ago. He is 64 his neurosurgeon works out of a hospital 2 hrs away. There is a cancer treatment center within 30 minutes of our home but they are refusing to transfer him there for treatment. It is expensive...
Hi all im new to this website and needing any advice or support at this difficult time. 1 month ago my mum (59) was diagnosed with an very agressive form , inoperable GBM grade4 and given 3-4 months to live. Me and the rest of the family have been living...
Final few days…. LONG POST ALERT !!!! Hi. I am Jyo, 48 year old full time working mum, wife living with my husband and 2 girls -21 and 12. My husband, 52 years old had a seizure in Apr 22 while walking along canal side and was rushed to hospital...
It will be great if there is a cure but also sadness it never came in time for our young partners. Xxx to all
