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My husband was diagnosed in 2017. I found this forum quite helpful in the beginning, but haven’t been here for a while. Mainly as my husband - Anthony- has survived so long. Apparently he’s in the top 5% of survivors, which I am so grateful for, until...
Hi all, I am writng just to find reassurance about what happened with my mum and hope I could get some advise about the standard care, I am a bit lost. hope anyone may have an answer to this: My mum 76 years old who was very active and healthy,...
Hi everyone, I thought it was about time I gave an update as it has been a couple of months since I last posted. I'm not sure it will be of any use to you all back in the UK as everything about my partner's medical treatment is so far removed from anything...
Need some advice please Husband diagnosed 13 years ago been a rocky journey all the way what with huge personality change, leaving work. Re mortgage house to buy him a home. We are now what I would call friends & still married on paper. I’m condensing...
Hi, I’m new here although I have been following and reading the threads for a few weeks now and have found the information/stories of members both comforting and very informative on what has felt like a very lonely and scary journey. My dad’s story...
My 1st ‘radiotherapy Session was 3 weeks of daily super aggressive appointments. I have just had my last appointment being told i have now been given the maximum dose that my brain can have. The radiotherapy now continues to work on my brain tumour for...
Morning I am not sure what to do anymore, I posted a while ago about my husbands personality changes. This has got significantly worse and his paranoia and delusions are at the point where I almost cast leave the house without him accusing me of seeing...
Good evening. My Dad has been fighting his GBM for the last 3 years and it has been stable until very recently. He is now in palliative care. On his care plan it states he should have physio but his OT has told me that he is not a priority. Dad has lost...
I have been diagnosed with a grade 5 Glioblastoma bran tumour and underwent a biopsy in Feb 2024. My oncology team decided that tumour testing showed my tumour most receptive to radiotherapy so treatment was decided to be super aggressive daily radiotherapy...
I’ve just finished my first 3 week super aggressive daily radiotherapy appointments and am really struggling with digestive issues has anyone found any coping skills that you could share with me medical staff have said we can now start to reduce medication...
