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hi , any experiences of limoustine ? Husband has the option of this after radiotherapy if ever his platelets go back up. So just wondered really is it generally well tolerated? He sailed through the temolozomide ( or however its spelt) i know nothing...
Hi I wondered if anyone has had a situation with paranoia? My husband is 15 months since diagnosis and currently on another chemo cycle. His short term memory has really deteriorated and there seems to be some sort of paranoia setting in. We had a decorator...
My daughter was diagnosed with Stage 4 Non-Hodgkin Lymphoma 6 years ago. Thankfully she was cured. My wife was diagnosed with GBM In September 2023 and died a couple of weeks ago. I am Feeling so sad, so sad. The help just wasn't there for us. Surgery...
Hi my husband has third time recurrence of gbm. ( previously had two surgeries, radiotherapy and TMZ) his oncologist has now moved him on lomustine. He seems pretty quiet and withdrawn at the moment. I don’t think there will be a third surgery as there...
Hi I know there have been a few threads on personality changes. I'm really struggling to come to terms with the changes I'm seeing. My husband is the most mild mannered easy going person ever but he's increasingly shouty and I'm walking on eggshells...
My wife of 43 years was diagnosed with GBM April 22. My daughter had just had twins that January. Anty had one of them on her knee when I noticed she was just staring into space. Ambulance,hospital and two weeks of stroke treatment. Then she got the call...
Hi Everyone. Its been a while since I've posted any huge update as although things haven't been great, we have just been ticking along with our "normal". Mum is now in a care home permanently due to a combination of safeguarding issues surrounding...
Hi all. My husband has GBM4 and his main struggles are around cognition in terms of speaking and understanding. His right side is affected where he experiences numbness down his arm and leg however he can mobilise fine currently. My question is does anyone...
Hi all, I feel like I need some positive news from people on here. Something like "My partner was diagnosed 5 years ago and they're still as right as rain", or something along those lines. Of course, there may be no one in that type of situation...
Hello, I am new to this forum. Looking for treatment information after my cousin (35 yo) was diagnosed with glioblastoma almost 2 months ago. He is currently going through the standard protocol (radio/chemo) but he is really keen on finding alternative...
