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Hello everyone … it’s been a while since I have posted. Not sure why … maybe a bit of burying my head in the sand and marching forward? Who knows … I’m not sure if it’s a conscious thing or not … Last January my husband had new tumour growth which was...
Hi all This may be my last post on here, I'm not sure yet though, I'd like to stay and help others but I'm just exhausted. I updated that my brother died 9 days ago, literally 3 days later I ended up in hospital, seriously ill. I'm not saying that...
Hi I’ve not visited the forum for a while and have just remembered why I always used to find so much comfort in reading all of the relatable stories. My mum was diagnosed with grade 4 GBM in April 2023. She had surgery which removed as much of the tumour...
My family member was diagnosed with Glioblastoma Grade 4. We spoke with a “consultant” — and I say that because he hardly spoke any English and has only been in the UK for under a year. He simply repeated what we already knew and said they would send...
Hi everyone Today I lost my amazing brother, I am totally heartbroken. I'd like to thank all of you who have replied to me and those who are affected by this dreadful disease xx
Hi, I get comfort from reading your journeys with this cancer. we reached a significant milestone yesterday with my brother S and I feel really sad. It is just over 4 years since S’s diagnosis. That makes him a long term survivor. he had open brain...
Hi all I've been on a few times in the past few months talking about my brother. I can't believe the weeks have passed and he's still here (just). The Consultant said possibly weeks just under a week ago but his decline has been rapid the last 2-3 days...
Hi, my husband was diagnosed in Nov 23. He used to post in here himself when he was well enough (chris4286). He found alot of comfort from the support he got so I thought I would try myself. Chris had SOC following diagnosis which ended in Aug, 24....
Has anyone managed to get insurance to go abroad given the prognosis of gbm? If so can you recommend insurance providers?
Hello, I am writing to ask if anyone has researched or considered going overseas to try treatment that is not approved in the US. I am considering going to Germany where they allow for compassionate care treatment. Specifically am considering a clinic...
