Last days

Hi Jessie, I am so sorry to hear about your brother, I think we are in final stages with my husband. He declined rapidly over september  week by week losing mobility, now bed bound not talking and no facial expressions.  I hope you find strength and please look after yourself, this is the most devastating illness and its so so hard to watch the decline. Please know you are not alone, sending you a big hug,  take care, you will get through this thats what  I also tell myself and Im holding onto that xxx

Dear Dayby Day

I'm so sorry you're going through this too. I tell myself I will get through this but the world with never be the same again (for me).

Sending you much love ️ xx

Hi Jessie

I been through this with my late husband. It is a very cruel disease and it’s heart wrenching to see your loved one go through so much pain.
My husband passed away 4 days after he stopped food and water. He was unconscious in those 4 days and the only relief is he was not in pain. He was moved to hospice once he stopped eating and they put him on syringe driver. His breathing was also erratic all along.

Take care of yourself. World will never be the same. It’s been 18 months since I lost my husband but life goes on. Sending you love, hugs and lot of positive energy 

Dear Jyo

Thanks for reply. 

My brother was commenced on a syringe driver 6 weeks ago so he could have continuous medication.  I thought at the time it wouldn't be much longer. He seemed to plateau for so long. He's not drank since about Friday so my feeling is it won't be much longer. 

Now going to him, it was hard to know what to do last night as I'd been with him in the day.

Better get moving....

HI Jessie

lovely to hear from you again. Sorry to hear that things have taken a downward turn.

G  lasted 6 days after he stopped eating and drinking but everyone is different. The key thing at this stage of the journey is that your brother is peaceful and pain free. In our case, the local hospice nurses were incredible at keeping G comfortable throughout.

Take each day as it comes and know that we are all thinking about you. You're not alone.

love and hugs

Wee Me xx

Hi Wee Me

I somehow can't believe I'm still on here talking about this, everything seemed to stabilise for weeks and now this big decline.  I don't want him to go but I don't want him to suffer any longer.  All I ever wanted was for him to have some "good days" before things got bad but it never happened.  I had visions of sitting in his garden on his swing chair and it never happened. Crying again now, Iever seem to stop..... thanks so much for always being here xx

I get it. It's too cruel for words but you are doing such an amazing job supporting him on this journey. 

Sending you a huge virtual hug.

Wee Me xx