Hello,
I am writing to ask if anyone has researched or considered going overseas to try treatment that is not approved in the US. I am considering going to Germany where they allow for compassionate care treatment. Specifically am considering a clinic called Biotherapy International. My oncologist does not think I should go but is offering nothing for me here. I have had 6 weeks of ratiation and am not able to do chemotherapy. My tumor is not operable, I have been given only a year to live. I would like to try experimental treatment as there is nothing to lose. I am considering oncolytic virus therapy. I would appreciate any input. Thank you!!!
Hi
a warm welcome to the community. Sorry to hear about all that has been going on.
MacMillan are a UK based charity so I'm personally not aware of what is or isn't approved in the USA. I supported my late husband through the 3 years of his GBM journey but he declined all further treatment after the first six weeks of oral chemo/radiotherapy.
There is another member of the online community who went to Germany for treatment. Here's the link to their post
Dendritic Cell Therapy (AKA DCVax) - Macmillan Online Community
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though I'm sending you a huge virtual hug and lots of positive energy.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
