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Hello, I suffered a stroke at the end of June and lost the left side of my body. Due to additional reduced mobility they ran scans and found a tumor(gliosblastoma highest grade still not sure what stage that refers to and. i may be sticking my head in...
I was looking for information as we had never heard of this type of tumour and didn’t realise until the meeting with the consultant before surgery how very aggressive it is. The Oncology consultant asked the CNS if she had arranged Palliative Care !!...
Hi there, my father in law was recently diagnosed with stage 4 glioblastoma. He is in his 60s and has had cancer before so I know his odds aren’t looking good, but I am looking for some positive, hopeful stories about glioblastoma!! anything at...
My husband is now 2yrs7 months post op- he had debulk) rasio/TMZ up to 3 months ago.His first symptoms about 4wks before his original diagnosis was memory issues, then doing things out of the ordinary, finally word finding issues and a change of gait...
Hi Just wondering if anyone can share any advice or experience they have with obtaining travel insurance for someone with a Glioblastoma stage 4? Any providers you found particularly helpful? Am assuming it will be expensive. Thanks for any hel...
Sorry if this trivial to many things that people are going through on this website but now I'm towards the end of a four day stay with my husband at my mum's over Xmas I wonder if anyone else experiences this. Basically my husband is 2yrs+ into his...
Hello again Dad had his first 3 monthly scan on Saturday and unfortunately there was signs of activity at the original tumour site. Even though the medical team have all been nothing but encouraging and pleased with his progress, I just had a funny...
Hi my mum was diagnosed with left Parietal lobe glioblastoma 3 years ago. She had an operation , radio therapy and 4 rounds of chemo (she couldn’t do the 6 as it was too much). They gave my mum 12 to 18months . My mum has exceeded all expectations and...
I had an MRI last week and today my oncologist calls me in for an appointment on Christmas Eve. I suspect it’s a really bad present this year
HI everyone I don't often start a post these days although I still reply to the majority of them on here. I exchanged a few emails with the Community Team this week and suggested this might be an appropriate time to re-share a blog I first wrote for...
