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I just want to drop in past to wish all our new and long standing group members and their families a healthy and safe 2023
Hi all just wanted some advice what should I expect from my specialist appt been confirmed with FL Also how soon does treatment start and how often? Thanks in advance
Hello, I was diagnosed in May, and have had 6 doses of OCHOP treatment. My condition has improved but I've also had 1 dose of maintenance treatment which I'll have regularly for the next 2 years.
Hi, Everyone I am two weeks into my first cycle of Rituximab/Bendamustine treatment for FL. I am not experiencing any nausea or loss of appetite (luckily) but have seen a meaningful drop in my weight (90kg to 84 kg) for the last two weeks. Some weight...
Thanks to Thehighlander I’ve found my way here, not had time to read much yet but I will. My husband has kidney cancer and is having yearly CT scans, that’s where the lymph nodes in his groin was noticed, I’m thinking they’ve been keeping an eye on...
Hello Everyone, Very new here, I am Raenbow, or Rae for short. I hope you are all doing as well as you can..I was diagnosed last week with Stage 3b Follicular Lymphoma.. I am due to start Chemo in 1 - 2 weeks time...Im only 33 years old and I guess...
Hi I'm currently in remission from NHFL since April this year I'm about to have number 4 of 12 Rituximab maintenance therapy but really struggling with fatigue I've never agreed with 'energy drinks' but now seriously considering trying some! My...
Hi i was diagnosed with grade 3B Follicular Lymphoma in early 2020. Had 6 cycles of RCHOP. I tolerated well with this treatment with minor fatigue. I’m relapsed with same and going to start treatment next week. This time I will be given Obinituzumab...
Diagnosed with Stage IV Follicular B Cell Non Hodgkins low grade 2 in January. Spleen is moderately enlarged. On watch and wait with no symptoms. Over the last month I have developed a gurgling in my abdomen similar to your stomach growling when you are...
Hi all, hope you are all as well as u can be today! Just found out that they are probably gonna have to treat me with Rituximab and Bendomustine deep joy!! As my friend lumpy tumour is expanding the wrong way into my organs!! Just my luck to have a stoopid...
