Watch and wait

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Diagnosed with Stage IV Follicular B Cell Non Hodgkins low grade 2 in January. Spleen is moderately enlarged. On watch and wait with no symptoms. Over the last month I have developed a gurgling in my abdomen similar to your stomach growling when you are hungry. Anyone else . Ps I’m a 64 year old retired male from Canada 

  • Hi  and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.

    I don’t have Follicular Lymphoma (FL) but was diagnosed in 1999 with another type of Low Grade NHL stage 4. My type is rare (CTCL) but is also incurable like FL but these low grades are very treatable. 

    Active Monitoring (Watch and Wait) is a mind game and indeed I was on Active Monitoring for 14 years before I needed full on treatment although I did have skin treatments….. but it is so easy to associate every health issue that comes along as your Lymphoma.

    The gurgling in your abdomen similar to your stomach growling when you are hungry could be anything including believe it or not stress. I had random abdomen/stomach issues over my early years but nothing to do with my Lymphoma it was simple tummy problems so my advise is talk with your clinical team.

    In the UK we get assigned a Specialist Cancer Nurse who is part of the clinical team who we can contact with these questions cutting out the need to talk with consultants.

    Do talk with your medical professionals.

    Always around to chat.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Thanks Mike I appreciate it

  • I was on watch & wait I think about 4  + years but just finished 6 months of chemo had the all clear so it’s fantastic , as Highlander said we get a lead nurse & there incredible can answer most questions & any fought they will have you checked I found Watch & wait hard strange words really , enough to frighten us i now max Lymph glands can go mad & grow again but I strongly am not worried try to life every day & keep honked or add to them , life is such a gift & we do have incredible honest Oncologists who if we ask always tell us the truth this makes for me it easier to cope with take care of your lack of immunity I try to be carfull who I see but do what I can outside Flew a owl in a hawking Center few days after 5 chemo keeping going helps I was told by long term patient do all you can I’m 80% disabled before this NHL Follicular B , but I get up do all I can I live a 24 hour clock . I find my need for food ect is at strange times wishing you the best purrwoman