Treatment!! Hairloss!! Cold cap!!

Hi Spoons, sorry to hear about 'lumpy tumour' misbehaving and you going into treatment.

Cold Caps are not recommended during Lymphoma Chemotherapy Treatment as the treatments for Lymphomas work in a rather different way from other types of chemos like in say Breast Cancer.

Because your FL is part of the blood cancer family, once the cancer mass start to break down the cancer cells will be dispersed around then eventually 'out' your body...... Cold Caps would reduce the effectiveness of the treatment in your head area resulting in a 'chance' that some cells will be left behind.

Do talk this through with your Cancer Nurse Specialist.

Some useful Lymphoma Action links.

Top Tips for the day of your Chemotherapy

Hair loss

((hugs))

Hi spoons I got a second opinion first consultant wanted to give me R-CVP and the other O-CVP the latter being more expensive. I had O-CVP from July 2021-October 2021. I had no side effects from the chemo I.e. no sickness, no hair loss, no weight loss was very lucky and others having had it experienced the same. I could have had maintenance for 2 years after but as my scans were clear at the end of treatment I decided not to have it. I am a year on and still free of follicular lymphoma stage 3. The cap was not an option. Drink at least 3 pints of water each day during chemo, very important and try and walk each day it will help deal with the treatment. All the best Spoons

Hi Clandon,

thanks for info, can you tell me what all the initials for those drugs are plz regard Donna

Hi Donna, there are lots of different chemo regimes - the following link will help unpack some but there are new ones coming on line all the time.

Common chemotherapy regimens for lymphoma

Hi Donna R-CVP Rituximub Cyclophosphamide Vincristine Prednisolone (Steroids) and O-CVP is Obinutuzumab and then CVP as above. Hope that helps 

You're very unlikely to lose your hair with R-Bendamustine anyway. It's not one of the usual side effects. Good luck.

Thanks mike, i been told im having Rituximab and bendomustine, just the 2 as far as i know x

Thanks clandon,

been told im prob gonna have Rutuximab and benamustine, thanks for the info regards Donna x

Omg some good news lol! Thanks londoner12, appreciate the info x

Hi Spoons, I hope you are doing ok.

I do hope that you are one of the folks who won't lose your hair when having Rituximab and Bendamustine  or at worst, only see some thinning......  but unfortunately this recognised as a possible side effect ((hugs))