Diagnosed with Follicular Non Hodgkin's Lymphoma December last year Treated with obinutuzumab/bendamustine: for three months although I felt much better PET scan showed increased Lymphoma activity particularly in bones treatment terminated Enrolled on...
My wonderful husband was diagnosed with Stage 3AS Grade 1-2 follicular lymphoma six weeks ago. He's had four rounds of Rituximab monotherapy and we're due to go for an appointment with the haemotologist this week and I'm so nervous to hear how they think...
Hello All, Well I didn’t think I would be doing this but life is life. I was diagnosed with FL and started OCVP treatment in May 2025. Had my PET scan in November and was given a Deauville score of 3 which was great news. I Started Obinutuzamab maintenance...
I'm 29 and received my diagnosis two days ago. I was by myself when I was told, put on a brave face but cried in the car. I have a PET-Scan in 2 weeks and have also been told my CT picked up a few spots in my left breast so also require a mammogram...
Dear forum members, I have just been diagnosed with a relapse of FL and looking for some advice/thoughts of others who have had specific treatments. A bit of background - I had stage 4 FL in 2020 in lockdown (not fun), I was on this forum then but...
Hi everyone Iris here. I'm coming to the end, 2 to go of my injections then 2yrs of maintenance therapy has finished. I'm feeling apprehensive about my follicula Lymphoma re surfacing. Has anyone experienced this. Many thanks
Hi Everyone, Hope everyone is good, I am new to this as have just been advised this week after a biopsy that I have follicular lymphoma, I have the following day had a pet scan and been show the results which means treatment is required starting within...
Hi. I was diagnosed with FNHL 9 years ago and put on watch and wait. For the last 3 years my haematologist has been trying to get me to start chemo. I have never had any B symptoms (weight loss, night sweats etc). Apart from fatigue I feel ok. Recently...
Hi again, I'm not really new here, just rusty. I had a diagnosis of Grade 4 FL about 6 years ago, completed 6 rounds of bendamustine and rituximab just before the pandemic. No maintenence, partly not needed, partly because of severe allergy to rituximab...
Hi, I have recently been diagnosed with stage 3 FL I am 48 years old and am otherwise healthy. I have a large swollen lymph node on the left side of my neck, just below the jaw line , which is how the FL was discovered. I am advised it is grade B and...
