Hello Is there anyone on this forum who is on a clinical trial for Follicular Lymphoma? K
Hi all, I was diagnosed with FL grade 3 stage 3 last july and was on Active surveillance for six months. I had a cat scan in February that showed that my disease is progressing but still considered indolent. My team advised me to enter the S2308 clinical...
Hi everyone new to the group and new to on line chats. I'm Iris I was diagnosed with low grade NHL in April 2024 and had 6 months of Chemo. Rchop. I'm now on 2 years Maintenance therapy with Rituxmab and have just gone back to work after 11 months off...
Hi had my first chemo on New Year’s Eve 2025……I’ll certainly never forget that new year eve and wasn’t the party I was planning to have!! 2nd chemo last week, good and bad days but sleep is THE biggest problem. Tried every kind of CD sleeping pill but...
I'm 74 and have worked very hard at keeping well I ride my bike hard 80-100k/week Swim and am walking the Camino Santiago in stages. Just finished my last 200k stage in October that's it 80% done just one stage left to do. I manage the 20-30k stages but...
Hello there, My dad unfortunately had the diagnosis of FL following a blood test back in October. Stage 3 - he had extreme breathlessness and his blood counts were all over the place, almost no RBC and hundreds of WBCs. He had his first chemo treatment...
Has anyone here had a methylation test , I will explain . Ive had my cancer since 2019 and had chemo yet it wiped me out , first day 5 reactions and from then on I didn’t understand my body or what was going on around me . My world vanished as I knew...
Hello everyone, I certainly didn’t think I’d be writing on here, but here I am. I am 31 years old and got diagnosed with follicular lymphoma today. I have a beautiful 16 month old baby and I am generally a very fit and healthy person. I had a lump on...
Hello. 6 weeks ago I had my diagnosis of low grade, stage 3 follicular non-Hodgkin's lymphoma. I am still finding it so hard to process and accept, partly because I feel absolutely fine. I was widowed nearly 5 years ago and became a single parent to...
Hi everyone, New here. Recently been diagnosed with non hodgkins follicular lymphoma. Stage 2 and symptomatic. Had numerous tests/scans. Recent Pet Scan on Wednesday. Bit overwhelmed with it all. Don't think I've really processed it at all fully.
