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I am receiving maintenance therapy for Follicular Lymphoma after completing a course of chemotherapy last year. I would love to hear from others how they are experiencing going back to work, how supportive employers have been and how they cope with the...
I moved to turkey last year. I have just been diagnosed with follicular lymphoma stage 3/4 B. Because I have been out of the UK for a year I am not entitled to NHS treatment even though I worked and paid NI all my working life. This also means I cannot...
Hi all, awhile since I've been on here. I have now finished my 6 monthly cycles of treatment for NHL Bendamustine with Rituzimab. All has gone remarkably well and consultant is very pleased with result of the end of treatment scan which shows virtually...
Hi all, Going on this Thursday for a PET CT scan to find out if my Lymphoma has changed.. Have to say I'm feeling a little scared..not knowing what the outcome is or how I will feel if I have to go through radiology again...either way I must feel...
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Yes, chemo drugs can cause neuropathy. I have the added bonus of trying to treat bone lesions (hip/femur). So I have nerves that were already damaged and painful. Chemo treatments exacerbate that to the nth degree. And I’m going backwards now. (FYI -...
Hi...I have folicular lymphoma...I'm at the point that I am waiting to find out if the treatment I had has worked or I have to go back for more.. I know that the cancer could come back somewhere else in the future which is why I am thinking about elective...
Any suggestions to help with extreme fatigue? My daughter is on Watch&Wait at present, but is really struggling to cope. She is sleeping a lot but is still exhausted all the time! Thanks
Hi everyone, I finished a series of rituimab/bendamustine treatment a few months ago with very good results. Previous to treatment I had a really good immune system, could be with my sick friends, grandchildren, come into contact with tummy bugs and none...
