Hi All I was diagnosed just over a month ago after getting blurry vision in my eye and going for a routine eye test, I opted to have my eye removed instead of proton beam therapy, I have just returned home from Liverpool from having my surgery, is anyone...
Hi everyone, I am a 47 year old married lady with three children, ages between 16-23 and a soon to be 4 yr old grandson. my world was thrown apart on the 18th of December when I went for a eye test thinking I needed glasses, I have always had amazing...
Hello all.. Recently diagnosed and have had the clips fitted last month. Going up to clatterbridge for pbt this week, am struggling tbh with the diagnosis and what the future holds.. Does anyone have any advice on how to get used to this. Does it happen...
Hi everyone, I’m sue and I live in Cornwall. I was diagnosed 6 years ago and have had radiation retinopathy since have brachytherapy. I’ve had numerous injections, laser, and lastly 2 victrectomies due to having constant bleeds from the start. My last...
Hello I have just joined the forum as my wife has been diagnosed with a melonoma of the eye. She has just had treatment with a radioactive plaque at Moorfields. I thought it would be good to contact people who have been going through the same situati...
Hello. I am 56 years of age and just had Proton Beam Therapy (Clatterbridge in Liverpool) for a malignant Melanoma in my eye. It was found a few years ago after a regular eye check up at Boots. I was referred to my local hospital, who then referred me...
Hi, My mum had her eye removed a year ago. The cancer has spread to her liver and she is getting pain and lots of indigestion. I’m looking for any advice on how to best support her, my family and myself. I’d also like to know what to expect in order to...
Hello everyone. Received a diagnosis of ocular melanoma (back of right eye) on Friday. I was expecting it to be confirmed but there was that little bit of hope that they were going to say they were wrong. I'm all over the place, I keep zoning in and out...
Hi all. Two weeks ago my husband received confirmation that he has a melanoma in his right eye. It is situated right on the ocular nerve and so the decision has been made that he will be having enucleation (I think that's the spelling) of the right...
Just a heads up, if you are going to have your MRI scans for your liver done at your local hospital make sure they are familiar with scanning people with eye markers after proton beam treatment. before your appointment. I had a real problem initially...
