Just a heads up, if you are going to have your MRI scans for your liver done at your local hospital make sure they are familiar with scanning people with eye markers after proton beam treatment. before your appointment. I had a real problem initially as they wanted to know specific details about these tantalum markers before they would put me on a machine. Make sure you get this information emailed to you from your cancer nurse so you can then give it to your local hospital electronically. I have learnt communication between different NHS trusts rarely works smoothly as often they fall short on this front and you really need to be very proactive!! I think this is probably due to our condition being so rare and Moorfield usually refer you to their nearby linked London hospitals but then when you are in the system you get referred to your own local hospital!
