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Hello everyone, It's been ages since my last connection to this wonderful group. Finished my 2 years of oral Venetoclax recently after chemo sessions in 2017/18 and then 23/24 ( combination of IV and oral). Just wondered if anyone is on this " watch...
I am 62, I was diagnosed with CLL 4 years ago, I have been in remission for 2 years, I have started a new drug Zanubrutinib, after an older version gave me bad reaction. The new version has given me a new life my lymph nodes have gone down. I am feeling...
Hi. Just wondering if anyone on the forum has just finished treatment for CLL ? I finished 12 m of obinutuzumab and venetoclax 6 weeks ago and whilst my lumps have gone , i am not yet feeling much different ! I think i was expecting a gradual weekly...
Hi All my name is Tim, I live in Stoke on Trent, I am 64 and was diagnosed through a routine blood test on a hospital admission for blood clots in both lungs with CLL or SLL. They are unsure as I am asymptomatic so on active monitoring (watch and wait...
Hello one and all, My name is Terry, and i hail from the beautiful market town of "Ludlow". I was diagnosed with Leukaemia (C L L) about four years ago, and since then my health has taken a nose dive. I am on Watch and Wait and have nothing really to...
Hello to everyone, back in Nov.2024 I was diagnosed with CLL . I have gone through a series of treatments being 4 treatments once a week via IV two times now. However in between these treatments my numbers dropped right back down. So my Oncologist is...
Hello Macmillan, Hello CLL suffers I,'ve had CLL for years and years, or so it seems. Well it's over. 20 years and still watching and waiting. I thought it was getting worse, with constant night sweats, going to sleep in the chair at the drop of a...
Hi all. I have just signed up. 8 months ago I was diagnosed with CLL, stage 3 melanoma and very low immunoglobin levels. I am 60 and feeling great but concerned about the future. Wondering if there are others in the same boat and what your experiences...
I just read a snippet of someone diagnosed with CLL.. OF COURSE you are worried, confused and looking for quick answers. I'm sorry there aren't any but every year as time goes by the worlds scientific brains are looking to find the answers you are...
