Hello one and all,
My name is Terry, and i hail from the beautiful market town of "Ludlow". I was diagnosed with Leukaemia (C L L) about four years ago, and since then my health has taken a nose dive. I am on Watch and Wait and have nothing really to complain about. However, i get really down and have depression to the point that i no longer cope very well. I have tried counselling, talking therapy, CBT, but nothing seems to help. I should say that the reason nothing has worked is down to me, i only have praise for the people i have met along the way.
I reacently had an operation on my Prostate to help me wee properly, and i honestly thought that i may get back to some sort of normality. But i can still go from being fine one minute to suicidal the next, Something i struggle to understand. I have ways to help me cope when it gets really bad. the one thing that always seems to help, is to write down how i am feeling. Anyway, over the past few years i have found that i have a knack for a bit of poetry. As a result i am now writing a short book. I don't pretend to be very good, due to my limited education. I also may be the worst person i know when it come to anything to do with computers or any sort of "Online" stuff. But if i post a few samples of my work to this forum i would very much appreciate some honest feed back. As in, if it's crap say it's crap.
Here's one i wrote earlier, it's called "Fleas on the brain"
To have fleas on the brain, can only mean i am insane. But how foolish i must be, to blame these fleas for my insanity.
Thank you, yours sincerely Terry
Hi Terry my name is terry and a very warm welcome to the Macmillan Community but sorry to hear about your CLL diagnosis.
I am Mike and help out around our blood cancer groups
Navigating a cancer journey can be such a stressful and challenging time but getting support from people who have walked or are walking the ‘exact same' journey can help a lot.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated CLL Cancer Support Group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support. To connect in with the group please click on the link below…….
……. and once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
Hello Terry (my name is terry)
Just to add to Mike's Thehighlander post above if you need any further help or information regarding your Prostate operation (A TURP by any chance) we are happy to help on the Prostate Group. Link here:
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi Terry, I am indeed blessed to stay in such an amazing area and yes the pubs and the traditional music is ever so cool…… especially as a life long musician.
I am doing great, 9 years 9 month out from my last treatment but as you see I had some post treatment bumps with other issues but I turn 70 at the end of the year and as a family our aim is to live life to the full……
Our aim is to define how we live and not let my cancer journey and the possible hang ups a lot of people deal with rob us of the gift of life I have been given.
Hello Terry (my name is terry)
Life is hard and like Mike I am 70 in October, Once I had my cancer diagnosis I decided it it would not define me.
It lives in my body, but i decide where we are going, shopping. the pub on holiday - it just follows me around!!
If you have been fit all your life then the complications that come your way with any cancer diagnosis are hard to accept and i can understand how it drags you down.
Help is out there - you need to find it rather than wait for it to come to you - there are some amazing groups like Men's Sheds and Andy's man club - not to mention "Maggies" and your local Macmillan centre - if you need any help give me a shout and I will fire you some contact details.
No one fights cancer alone and I am happy to help - you know where you can find me.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
